Monday, June 14, 2010

Delwin went to both Dr.s Johnson and Riley on Friday. We go to the radiologist on Tuesday June 15th they will make a mask of Delwins face to hold his head very still and in the same place each time he goes for radiation. Which will be every day except Saturday and Sunday for six weeks. The Chemo will be in pill form and will also be taken every day for six weeks then about two weeks off and five days of chemo 3weeks off and so forth for a year. This should start Thursday June 17th. The Dr.s say that Delwin can do whatever he feels like doing. It is unknown how his body will react to the treatments so we hope that he feels well for along time. Toward the end of the treatments fatigue will set in and it will destroy the immune system. So we will take one day at a time. Today Delwin is feeling good and is able to do more each day.

Tuesday, June 8, 2010

On Monday Delwin was able to go to a management meeting at work. It made him happy to do that, he was very touched at the love and support he received from the people there. We had a tiny set back Monday as well we got a phone call from the radiologist office saying that Mckay Dee was not in our insurance network and we would either have to pay the difference or go to Logan for part of the treatment and then back to Ogden for the other treatment and then if Delwin felt like he would work stay in Ogden every day for six weeks. This just would not work so the people at Dr. Johnson's office worked it out that we could change radiologist to Ogden Regional Hospital to a Dr. Harris. So we can do the treatments in Ogden. We are happy to go to Ogden Regional that is where Delwin had all his heart stuff and they treated us very well. We can also do blood work and MRI's in Brigham Hospital so that would be really great. We don't see Dr. Harris until Friday morning and then to Dr. Johnson that afternoon and hopefully have a plan. Dr. Johnson said that if Delwin feels well enough to work that he can I am hoping that work will set Delwin up at home so he could work from here. Especially when his immune system is low. We will see how it all comes about. Thank you all so much for your love and prayers we can feel it very much! Just one day at a time.

Thursday, June 3, 2010

Yesterday we went to the Oncologist Dr. Harold Johnson. He was every kind but did not pull any punches. He made appointment with the radiologist a Dr. Whipple who will lead the charge of treatments. Most likely it will be 6 weeks of radiation and chemo every day. There is also a trial of a new drug that they will see if Delwin can do as with all trials we won't know if we are getting the real stuff or the fake stuff. With the both the radiation and chemo the odds change a little bit from an average of 15 months to two years. The chemo is in pill form and is called Temozolomide it is to work with the radiation. The good news was that Delwin can do what every he feels like doing. So he is hoping to go back to work at least part time. He has had work start sending him his emails so he can do some things from home. We see the radiologist next wed and then Dr. Johnson on Friday the 11th.