Saturday, June 26, 2010
One week down 5 more to go! Delwin is doing really well with the treatments. He has not been sick and has been able to go into work several hours a day. We go down for the radiation in the morning and then he goes to work I go with him and read or nap until he is worn out then I drive him home. He rests for a little bit and works on the computer (work) until about 5:00pm then we get up in the morning and do it all again. We saw both Doctors and they seemed to be pleased with the first week. We will not know how it is effecting the tumor for at least a couple of months or longer. So we are still just one day at time but each day is a gift and a miracle which we are very thankful for.
Tuesday, June 22, 2010
Delwin has had two days of treatments. so far things are going well, he has been able to go to work after 6 hours on Monday and 31/2 at work on Tuesday with about 2 hours at home. Work has set him up so he can work from home when he needs to it is really wonderful. Tomorrow both treatments again and we see Dr. Johnson for a Blood test to check the white blood count. Only 40 more treatment to go!
Sunday, June 20, 2010
Wednesday, June 16, 2010
Monday, June 14, 2010
Delwin went to both Dr.s Johnson and Riley on Friday. We go to the radiologist on Tuesday June 15th they will make a mask of Delwins face to hold his head very still and in the same place each time he goes for radiation. Which will be every day except Saturday and Sunday for six weeks. The Chemo will be in pill form and will also be taken every day for six weeks then about two weeks off and five days of chemo 3weeks off and so forth for a year. This should start Thursday June 17th. The Dr.s say that Delwin can do whatever he feels like doing. It is unknown how his body will react to the treatments so we hope that he feels well for along time. Toward the end of the treatments fatigue will set in and it will destroy the immune system. So we will take one day at a time. Today Delwin is feeling good and is able to do more each day.
Sunday, June 13, 2010
Tuesday, June 8, 2010
On Monday Delwin was able to go to a management meeting at work. It made him happy to do that, he was very touched at the love and support he received from the people there. We had a tiny set back Monday as well we got a phone call from the radiologist office saying that Mckay Dee was not in our insurance network and we would either have to pay the difference or go to Logan for part of the treatment and then back to Ogden for the other treatment and then if Delwin felt like he would work stay in Ogden every day for six weeks. This just would not work so the people at Dr. Johnson's office worked it out that we could change radiologist to Ogden Regional Hospital to a Dr. Harris. So we can do the treatments in Ogden. We are happy to go to Ogden Regional that is where Delwin had all his heart stuff and they treated us very well. We can also do blood work and MRI's in Brigham Hospital so that would be really great. We don't see Dr. Harris until Friday morning and then to Dr. Johnson that afternoon and hopefully have a plan. Dr. Johnson said that if Delwin feels well enough to work that he can I am hoping that work will set Delwin up at home so he could work from here. Especially when his immune system is low. We will see how it all comes about. Thank you all so much for your love and prayers we can feel it very much! Just one day at a time.
Thursday, June 3, 2010
Yesterday we went to the Oncologist Dr. Harold Johnson. He was every kind but did not pull any punches. He made appointment with the radiologist a Dr. Whipple who will lead the charge of treatments. Most likely it will be 6 weeks of radiation and chemo every day. There is also a trial of a new drug that they will see if Delwin can do as with all trials we won't know if we are getting the real stuff or the fake stuff. With the both the radiation and chemo the odds change a little bit from an average of 15 months to two years. The chemo is in pill form and is called Temozolomide it is to work with the radiation. The good news was that Delwin can do what every he feels like doing. So he is hoping to go back to work at least part time. He has had work start sending him his emails so he can do some things from home. We see the radiologist next wed and then Dr. Johnson on Friday the 11th.
Wednesday, June 2, 2010
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